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Nothing About Us Without Us: How Lived Experience Can and Should Guide Eating Disorder Treatment and Research

This course was updated 79 days ago. If you're about to take the exam, you may benefit from reviewing the exam questions listed below before starting on the actual exam.

About the Course:

Three longtime advocates with lived experience will present and engage participants on the controversial topic of how people affected by eating disorders and our families are integral and essential contributors to every facet of the eating disorders field. Sufferers and families possess an enormous wealth of knowledge that can guide both treatment and research exponentially, yet we are a severely underutilized asset. We are critical stakeholders who simultaneously hold perspective of the past and the investment in the future of the whole patient and the whole family yet are frequently left out of strategic conversations and policy decisions on topics that directly impact us. This is detrimental to the eating disorders field, since patients and our families bring unique perspectives to diagnosis, treatment, and research priorities through our lived experience. We provide context regarding impact, environment, and non-clinical aspects of the illness that cannot be acquired anywhere else. Patients and caregivers can help clinicians and researchers expand their view, offering dimensions that can only be seen through lived experience. This workshop will illustrate the significant benefits of collaborating with patients and families, and refocus the professional community on the needs and knowledge of people affected by eating disorders. Making sure patients and caregivers occupy a seat at the table, with meaningful inclusion, and learning from their lived experience, bridges gaps between research and practice and improve outcomes. Among the benefits: enabling clinicians and researchers to gain insight into why current treatment may be failing, providing vision into aspects of eating disorders that are only seen with lived experience, and promote partnerships that advance the eating disorders field as a whole. An international panel including both a recovered patient and parents in our lived experience roles

This course is based on the book, Nothing About Us Without Us: How Lived Experience Can and Should Guide Eating Disorder Treatment and Research created by Judy Krasna, Chevese Turner, and Laura Collins Lyster-Mensh, MS in 2020.

Publication Date:

Jul 2020

Course Material Authors

Judy Krasna
Chevese Turner
Laura Collins Lyster-Mensh, MS

Founder, Current Outreach Director, past Executive and Policy Director for F.E.A.S.T., the only international parent-led parent-focused eating disorder advocacy group in the world.

Co-Founder of Charlotte’s Helix, a UK DNA project to contribute to AN25K, a search for the genetic underpinning of eating disorders vulnerability Awarded Meehan/Hartley Award for Public Service and/or Advocacy by the Academy for Eating Disorders.

Experienced peer mentor alongside parents since 2003 Academy for Eating Disorders member and volunteer with an M.S. in Environmental Conservation. She is a Popular international speaker: US, Australia, Canada, Austria, an author of two books for parents about eating disorder treatment, a longstanding advocate for families and organizer and host of two international eating disorder conferences

Course Creator

Sandi Cardaman

Sandi Cardaman has been a Licensed Mental Health Counselor for more than 15 years. She has worked with eating disorders, domestic violence and clients who are working with the dependency system.

Recommended For:

Counselors, marriage and family therapists, psychologists and social workers. This course is appropriate for all levels of knowledge.

Course Objectives:

  1. Gain insight into why patients and caregivers have vital expertise in our own care and in the care of our loved ones and why “nothing about us without us” should be normalized

  2. Learn how using the lived experience of patients and their families will enhance and improve research and clinical practice

  3. Understand why the meaningful inclusion of experts by experience in the eating disorders field is essential for just and effective treatment

Use our CE Approvals tool to look up your state requirements and how can help you meet them, or log in to your member account to show approvals relevant to your licensure.

American Academy of Health Care Providers in the Addictive Disorders (AAHCPAD)

1 credit hour

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American Psychological Association (APA)

1 credit hour

CE Learning Systems is approved by the American Psychological Association to sponsor continuing education for psychologists. CE Learning Systems maintains responsibility for this program and its content.

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Commission on Dietetic Registration (CDR)

1 ce credit hour

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NAADAC, the Association for Addiction Professionals (NAADAC)

1 credit hour

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National Association of School Psychologists (NASP)

1 credit hour

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Recorded Material

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Exam Questions

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Course Number 102896
1 credit hour
Log in for credit hours relevant to your licensure.

  • Recorded Webinar
Exam Fee: $5.97 No exam fee with a membership package!
4.13 out of 5
15 members have taken this course